A Brief Caitlin Update

…because the good news is, there isn’t much to update.

Trust me, when it comes to medical stuff and kids, it is BORING that you want, and we have been deeply grateful to be in the land of boring for the past couple of weeks.

Caitlin has been healing up nicely. She had a follow up appointment with her surgeon at the end of February, where he noted that he was really pleased with how good everything looked.

She’s off of her pain medications. She has begun to roll to her side when lying down under her own power. We’re still working on getting her to keep stretching and using her legs.  She is slowly building up her stamina for sitting up, both in her chair and, say, on the couch. We were able to solve the barfing problem with a new medication that limits her secretions, which means that her breathing has been getting better. 

She has made it through the ENTIRE SERIES of Full House, which she enjoyed very much. (Her dad, not so much.) She’s also watching a ton of other stuff, including Cosmos last night. 

This is the period where we just slowly wait for bone to grow. We’re working on getting her wheelchair adjusted for her new back, which is one of the last steps before she can go back to school, possibly some time in April maybe? We’re playing it by ear, but we are very happy with her current progress. Michael has been doing an amazing job caregiving for her, and I’ve been back at work and getting back into the swing of things, spelling him as I can on nights and weekends. We make a great team.

So far, so good.

We are deeply grateful for everyone who has visited, brought us food, sent Cait notes and gifts and silly pictures and all manner of things. Your support has meant the world to us.

The snow is beginning to melt. Now we look forward to spring.



About Lynne M. Thomas

Lynne M. Thomas is a nine time Hugo Award winning editor and podcaster. In her day job, she is Head of the Rare Book and Manuscript Library at the University of Illinois at Urbana-Champaign.
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