Tag Archives: Medical

Well, the good news is Caitlin regained the weight she had lost over the first 6 months of 2014, so she’s back to her pre-surgery weight. The bad news is there’s no apparent explanation for her vomiting beyond “Aicardi Syndrome.” Her … Continue reading →

Michael has written it up. …now we know why we’ve been so tired.

This entry is reblogged from Michael, who said it better than I.   The picture tells the story. That is Caitlin sitting up straight and unassisted 2 1/2 months after her spinal fusion surgery. 🙂 $300,000 or so worth of … Continue reading →

So, uh, sorry that it took me 10 extra days to wrap all of this up. It’s been a bit busy. We spent several days in our new hospital room in the pediatric ward, where the attempts to fix Caitlin’s … Continue reading →

We were moved out of the ICU yesterday to the pediatric floor. This was a slight deviation from the usual plan, which would put us in the orthopedics floor. However, Cait’s surgical stuff has done great. The problem has been … Continue reading →

The past 2 days have been full of ups and downs. Cait’s heart rate is still more elevated than everyone would like, and her breathing is still on the shallow side, and the “why” of both of those things has … Continue reading →

Tuesday was a very long day. It started at 4:15 am. It didn’t end until nearly 11pm. So, she went into surgery around 8am. The first incision was at 9:15 am. We got updates from the operating room around 10, … Continue reading →

So, our odyssey began on Monday, when we went into Chicago to do pre-operative bloodwork. Remember the weather on Monday? -20something including windchill? Schools closed, including NIU? Stay home or there will be COLD DEATH AND DESTRUCTION, for we live … Continue reading →

Michael posted an update that I’m sharing: Today is Caitlin’s last day of school before the spinal fusion surgery. By the time Caitlin goes back to school in 7 weeks or so, it will be springtime and warm. Today it … Continue reading →